A year now and most of the time my brain has been a bowl of pudding. But I think I have learned a couple of small things
1. A sure way to lose friends and alienate people is to mention your dead baby. Grief is inconvenient and unwieldy and you should really try to keep the cover on it. It's not that they don't care. They do, but they want you to get the whole thing over with so everyone can go back to the way things used to be. And didn't they show up for your service? Didn't they graciously accept your misery before you even understood enough about the situation to be miserable? Whose fault is it that you were so in shock for the first months that loss had not yet come to define you, settle into your very bones until long after all the friends and neighbors had packed up and left?
2. Loss is a menacing trickster. One day you may feel the weight lifting ever so slightly, but just as suddenly (and surprisingly) as that feeling appeared, the tractor of trailer of sorrow will hunt you down and level you at full speed.
3. Time is linear but grief is not. Time may heal most wounds but the death of a child is surprisingly immune to this form of treatment.
4. Right after Eva's death, a nurse told me that men and women grieve differently. At the time I thought, "she doesn't know us." Apparently, she does.
5. I thought I cared about my child's "quality of life." I don't. I care about her life period and know that I am no judge of its quality or lack thereof.
6. No matter what choices I made, I would have regrets. Regret is one way of pretending I had some real control or say in what happened. If I could go back and undo or redo, I would only replace my current list of regrets with new ones. This is seemingly the natural course of motherhood.
This started as an online journal in early 2006. At the time, it was a carefree spot for silly diatribes and the occasional photo. Since then, I got pregnant with mono.amniotic mono.chorionic twins, learned one of our daughters had a heart defect, spent 11 weeks in a hospital room and 29 more days with Eva in the NICU and PICU before losing her. We have two children who are alive and thriving and one who didn't make it. For me, this has become that place in between.
Thursday, March 27, 2008
Wednesday, March 26, 2008
At this moment
The surest way to repel people it seems is to tell them that I lost my child and that I'm hurting. Close friends, long-lost acquaintances, my mother -- I am honestly surprised by the roaring silence around me.
Almost a year on, I can almost smell the plastic tubing and the blood. I can feel your warm soft skin, your wisps of hair. There has been nothing worse for me than this feeling. It used to be that I cared about quality of life. Now I only care about life. I would take you in any form. Not that I want you to suffer, but I want you here and I am no closer to peace and understanding, no closer to resolution.
Almost a year on, I can almost smell the plastic tubing and the blood. I can feel your warm soft skin, your wisps of hair. There has been nothing worse for me than this feeling. It used to be that I cared about quality of life. Now I only care about life. I would take you in any form. Not that I want you to suffer, but I want you here and I am no closer to peace and understanding, no closer to resolution.
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